Wednesday, March 14, 2012

Treatment For Jenny T

Hi, Its Jenny,
Sorry I haven't updated in awhile, I wish I could write something positive, but I cant. Unfortunately I've been down for quite sometime now, its how it goes with this disease. I haven't written in awhile as I have been getting steadily worse and have been fighting to get anything for medical care from any doctor at all concerning my throat... and all I get are dead ends and the run around still. 

Seems the more I try to help myself and others the more I deteriorate. As I had previously mentioned, I am failing fast. Now I am down to only enough energy to try to help myself. Its so very hard for me to write as my thoughts are very hard to put down as they sorta get stuck.. its the only way I can explain it. So Please bear with me. 

They are still playing around in Canada with our lives. Saying things like they are trying to keep us safe ..from a 40 plus year old procedure that helps everyone in Canada and has for some time and would help a lot of ms patients suffering a venous problem on top of having ms if they would let it.

In the mean I am.. choking on and aspirating any food or drinks I try to eat.. on a daily basis , most days now I barely eat at all.. I live on whatever supplements I can choke down that day. I really really need this surgery and I am ashamed that my country has put me in such a desperate situation, where I have no choice at all concerning my health unless it involves poisoning myself. I have no choice but to depend on the compassion of friends and strangers to help me get the treatment I need in order to live and be a functioning parent to my child.

I miss being able to sit down and eat and breathe and talk with friends. I miss being able to think and move and work and have relationships with people. I miss life so much!! I do my best with what I have, and I smile as much as I can, but as I get weaker and weaker and less hope is offered except poison to kill myself faster with, I do not want to give up and let this disease take me! 

How much closer do I need to be to my death bed before someone hears me? My voice is barely a whisper as my throat closes off and doesn't allow me to eat or breathe or speak or be normal and have a life and raise my child or do things with her instead of her caring for me and being afraid to leave me alone to go to school for fear of finding me dead upon her return. This is how I have to live. Afraid all the time. how much time do I have before tubes have to go in? Why cant I have treatment before it comes to that? 

All I have ever done is help people. I was a palliative care nurse. Why Canada? Why cant I have help too? I know they do not care that I awake in the night struggling to breathe because my throat has closed on me, and if I went to the hospital they wont even help me as there is nothing they can do except intubate me and make my already shortend life, that much shorter.

I am a person! I FEEL! I have a heart, I have hopes, dreams, wishes of a life without pain, to see my child grown up and excel and be prosperous. So far with the way things are going, these are things I will never realize.. all because my country's government is too stupid to see when they are being snowed over by a medical group that has way to much financially tied up in us to let us have quality of life. Maybe that's bitter to say, but my life is on the line would you feel? All I can say right now in my loudest whisper because that's all I have..I CANNOT WAIT ANYMORE CANADA OR I AM GOING TO DIE! PLEASE SOMEONE HELP ME!!! PLEASE I AM BEGGING!! PLEASE I AM DESPERATE!!!!!

Hi There, 
Its me Jenny..  I Thank You So Much For Saving My Life.  
You Are Canada's Hero's.. those who do everything they can to help us ccsvi patients/ms victims keep our lives with helping us obtain healthy blood flow. Until Canada can get their heads out of the sand and determine that circulation really "IS"  important, and realize that without circulation there is no life, we are doomed with out you. I'm writing this as I do not feel I have any other course of action at this time as I am failing fast. I wont make it to the time when Canada finally decides that ms patients are worthy and deserving of healthy blood flow and quality of life. So if I do not act now, I know I wont have a chance begging for my life on my death bed. They Will just stand by and let my loved ones watch me die. Regardless that they have the power to fix the physical venous issue I suffer from that will save my life. They will with hold it at the cost of my life and others. I'm a single mom on a limited restricted income.  I have a young daughter... who is going to lose her Mom if I do not receive this treatment before its too late. Therefore, my life depends on the generosity of family, friends and strangers to help me get the medical care I need from another country, because I cant get what I need at home. I am truly humbled. When you lose your ability to swallow, you're on borrowed time. Having been a healthcare professional myself before I could no longer work in the field, I know what is coming, and what to expect. Once the tubes go in, the mortality rate is about a year... I just turned 44.. Im horrified I'll be on tubes by 45..after that ..will I even make it to 46? will there be any chance of reversal for me when and if ms patients are ever allowed this treatment in Canada? ...the likely hood.. is slim, if at all, especially if I try to wait for treatment here in Canada, I will not survive. The only way I will if  I am able to obtain this treatment as soon as I can. Our government and medical hierarchy have proven themselves and they Will just stand by and let us die as they have in the past. So despite the fact that they can save us, they just choose not too.  

Thank You, from the bottom of my heart for all your help and support. You Are Truly MY Hero's!  


  1. Jenny we will do what we can to help. We love you and need you as part of the group, BUT your daughter needs you the most!! Tim.

  2. We will do everything we can to help. We need you as part of us BUT most of all your daughter needs you.

  3. Thankyou So Much! God Bless :)
    Love n Hugs

  4. It's scary in so many ways for us and I HOPE you will be able to get rid of this fear soon. My boys missed not having me there as I should have been and I know how you feel. Guilt is there 24/7 for me but it doesn't have to be for you :)

  5. Shirley Thankyou. :D Much Love! <3

  6. T,
    You are very special to me and I hope that you get the treatment that is needed for a full recovery. You are always in my prayers and thoughts....I wish I was able to offer more

  7. Thank You Brian. Much Love, Biggest Hugs :)

  8. Jenny, We donated from our family to yours. We only wish we had more to give. xo

  9. T,
    The world can not stand to loose such a kind and wonderful person. I pray that this helps you to get the treatment that you need. Miss you and LOVE you lotts. Say strong :)

  10. Tim n Lisa,Thank You!! I love you guys!

  11. Tamra,I Love and Miss you too Lady!!
    Thank You Babes! :)

  12. You might also post this fund raisng on (one I did) as it also is found in s/e and can print and share all over easy. Good Luck, saying prayers,,,,,, and hope Canada wakes up soon. Even tho we are stateside, we had to travel from Ohio to Ca to get it done. Need LOTS more clinics!!I post this here to show people what CCSVI treatment is as many do not know. Blessings, Betty

  13. Thank You Betty,Very Much :D Big Hugs! <3

  14. I would Like to send a Big Thank You out to those who have anonymously helped. Thank You! You know who you are :D and a Big Thank You To Everyone! for keeping this going for me by sharing.
    I Really Appreciate everyone's help and efforts to make this happen for me.

    Much Love n Hugs

    I am at about 8% to my goal to date.

  15. Hi All!
    Thank you so much for sharing my blog and for helping with donations for my treatment.
    You all Totally Rock!
    Saturday's fundraiser for Denise and I was Awesome!! Thankyou all! That has given me a good start towards treatment. I am about 17% of the way there to date. WOOT!!
    Thank you all so much for continuing to share to get me there <3 Much Love!

  16. Hi All
    I just want to update how things are going, at present I am sitting at 30% of the way now, I still need to come up with the remainder to be able to go. I will be holding another event, where ,when and what I will get back to everyone with soon. Thank you for sharing my page, because of you I will get there that much faster. Thankyou All So Much for all your help and support.
    Much Love <3
    Hugs Jenny

  17. Hey beautiful lady! I've donated and wish you the very best! There is nothing more that I want then for you to reap the full benefits of the procedure. Love and hugs - Kerry Vezeau

  18. Hi All, I know I haven't updated in awhile. I am still at my last current position. I haven't been able to fund raise for myself lately and I appreciate your continual support in sharing my blog with friends. I had planned on having something else set up to fund raise by now, but that takes more health and energy than I have had lately. I am still doing everything I can for the fight to bring treatment for the condition of ccsvi to ms patients in Canada through the org. If anyone has any suggestions as par fund raising ideas for me.. I am all ears. :) As far as my condition, I am holding my own at the moment,everyday is a gift. :) I am keeping smiling and positive. With your continued support, I know I will get there. :) Thank You <3
    Much Love

  19. Jenny,
    I', a friend of Jeanine Baker and she posted your U-tube on my FB Page. I was more than moved. I'm a disabled Police Officer (chronic Pain Patient) and while I put on a good face (as I sa you do in your U-tube... pain is pain.) I feel for you, wish you the very best. I wish I could help you I have no magic wand and I DO understand the feeling o futality..GOOD LUCK!

  20. Hey Sweets..I'm posting on both Twitter accounts and Facebook..just sent a donation via paypal..I'm sending you much healing energy bundled with love..I WILL happen!! <3<3<3
    Peace Love and Light to you